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Advice Needed - Burning Scalp Pain

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Advice Needed - Burning Scalp Pain

Post  Burninator on Thu Apr 05, 2012 1:18 am

Starting last July (2011) I started having some burning scalp pain all over my head, top, back, side, front, you name it. This all started during an extremely stress time in my life where I broke up with my long-term GF, tore my knee and dealt with a lot of crap at work. Around then I also decided to wash my hair with better shampoo so bought some Avalaon Organics stuff. Initially I figured it was all stress and would pass, but it's been almost a year now and my head still kills. When this started I had a very very thick head of hair, a little recession to maybe a NW1.5. There is no history of hair-loss in my family and my Dad has a full head of hair at 75, Grandfather on Mom's side died in his 50's but he had hair. Since this began I know for a fact that I've lost hair, but what's odd is it appears to just fall out and not regrow. I've been to 3 dermatologists (all worthless) who mostly prescribed me a) anti-anxiety meds or b) topical steroids. I also had a biopsy done which showed a moderate shift from anagen to telogen, which makes me think when my hair falls out it's not growing back. Is this TE? I think if I can cure this non-stop burning my hair will grow back, but I have no clue how to do it. Here is what I've tried.

Ate healthy: No junk food, only water and natural juices (like OJ), all organic fruits and vegetables, seeds, wild-caught fish and organic chicken.
Myriad of Essential Oils: Emu Oil, Jojoba, Spearmint, Rosemary, Lavender, etc etc.
Gone through probably 20 shampoos (none with SLS): Regenepure, Dr. Bronners, Avalon Organics, etc etc.
Folligen Spray

The thing that oddly enough seems to help the most is when I DON'T shower. Showering (doesn't matter the water temperature) KILLS me head. After I get out and my hair dries it burns like the fire of a thousand suns! The more days that go by that I don't shower the better my head feels. I've taken to using dry shampoo (organic powder) and cutting my hair very short. The less my scalp is touched the better it is, one time I fell asleep on a road-trip and when I woke up the back of my head that was on the head-rest killed me beyond belief.

Any advice anyone can give would be most appreciated, I know this is probably scalp inflammation and is possibly an auto-immune response triggered by stress so now my system is attacking my hair follicles. I'm hoping the damage done is reversible provided I can fix the inflammation. My next steps are going to an acupuncturist and an internal medicine guy who is going to run a crap-ton of blood work. I had some blood-work done already and my thyroid checked out fine.

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Re: Advice Needed - Burning Scalp Pain

Post  AS54 on Thu Apr 05, 2012 1:27 am

Hey Burn,

I'm not going to have the answer you are looking for. I just wanted to point something out that seems to be similar in my situation. I have rosacea also, and it always flares up extremely bad after a shower. I know that it's likely due to the vasodilation of warm water, but I'm also aware that rosacea has an bacterial component. I wouldn't be surprised if your issue after showering is a combination of dry irritated skin, vasodilation and inflammation from some type of fungal/bacterial issue. Do you have rosacea or any gut problems?

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Re: Advice Needed - Burning Scalp Pain

Post  Burninator on Thu Apr 05, 2012 1:34 am

I have IBS and a lot of allergies, come to think of it I do have a lot of the symptoms of leaky gut. I have various joint pain that I can't seem to shake and I've taken a lot of NSAIDs and antibiotics over the years. I don't have rosacea but I've been told my multiple doctors and my gf that I have really really hot spots on my head, basically hot to the touch. I've tried to kill an fungal/bacterial issue with the essential oils and some shampoos with keto, but maybe I'm not doing enough. Sometimes I swear I feel like my scalp is crawling but it's possible that's just in my mind.

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Re: Advice Needed - Burning Scalp Pain

Post  hadrion on Thu Apr 05, 2012 3:20 am

Burniator - Look at my signature and see what I'm taking. Not all of it is for inflammation, but a lot of my regimen is built around fighting it. Ecklonia Cava Extract is essential here for fighting inflammation. If you've been to a derm they probably might have tried to give you a script for Doxycycline, right? Ecklonia Cava is a safe form of what Doxy can do for you and won't ruin your gut. It will also help with joint soreness and blood flow. You also need to be on a good probiotic to repair the damage from the anti-biotics you've been on. Culturelle is good. Dr. Ohhirra's is better but pricey. Start probiotics to get your gut health going in the right direction. You should also consider chelating. Chelating helped me tremendously and has made the supplement regimen I use even more powerful. That and diet.

I'd back off the sugar and fruit juice for a awhile and focus on meat, fish, eggs and veggies and use either potatoes/Sweet potatoes/white rice or beans for carbs. Eat fatty cuts of meat and fish. Cook in butter, coconut oil. Eat steak, salmon and if you want chicken eat it with the skin on and not the lean fat free cuts. You've got a long road ahead of you and there is no instant fix. You're going to have to experiment with diet and supplements to find what works. That said, CS and everyone here has helped me over many years to put together a regimen that shuts inflammation down for myself. I used to wake up in the middle of the night scratching my head like it was on fire. I haven't done that in years.

I would strongly consider getting on CS top supplements and changing the diet. Look up the Perfect Health Diet in particular which a lot of people have success with when fighting autoimmune related issues including rosacea.

As for a topical, colloidal silver sprayed on your scalp post shower will also help with inflammation and should shut down the scalp itch. Good luck!

Most of all be calm and try to process the stress differently than you are used to. That's what started it all for me. I went through a very stressful period in my life 6 or so years ago and my scalp got inflamed and my hair started falling out in clumps on top.

Don't let the derms put you on immunosuppressants if they try to talk you into them. That will create a host of problems for the rest of your life you don't want to deal with.

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Re: Advice Needed - Burning Scalp Pain

Post  AS54 on Thu Apr 05, 2012 5:21 am

Totall agree with Hadrion about the diet element. From the sounds of it you might be having some immune issues. I believe these systems could be from overimmunity, maybe stemming from leaky gut. All in all, I think most of these problems reside in the gut and that's where treatment should be focused. I think the diet recommendations Hadrion gave are spot on.

Some other resources that I think would really, really help are:

- Dr. Art Ayers blog: http://coolinginflammation.blogspot.com/
- All of the stuff on Healthyfixx
- And last but not least, do the GAPS diet (gapsdiet.com) for a few months and see how it does for you...it helped clear up most of my gut issues, unfortunately I stopped to soon and went right back on the offending foods.

If you, like me, are experiencing hair loss at a young age that is just too rapid to fit the normal MPB timeline, I would almost immediately blame gut issues: leaky gut, and biofilm. Art Ayers blog addresses biofilm some, but all of Rdkml's posts and Littlefighter's are amazing.

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Re: Advice Needed - Burning Scalp Pain

Post  Decro435 on Thu Apr 05, 2012 7:02 am

Burniator,

I understand everything you're saying. I have the exact same issues with scalp pain. I get burning sensations all over my scalp especially in the temple/vertex areas. I understand what you mean by the crawling sensations, to explain it to others it's exactly like twitching muscles except faster.. It seems to flare up at times of stress too.

I also have IBS, it seemed to set it after I picked up smoking which is understandable. I guess I picked up smoking because of stress and I guess I was stressed because of my hair loss. Ughhh...

Oh I also have red cheeks, not rosacea but just red. I guess this is related tro cortisol...

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Re: Advice Needed - Burning Scalp Pain

Post  Crusher on Thu Apr 05, 2012 7:13 am

Burninator,

give topical Kefir a try.

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Re: Advice Needed - Burning Scalp Pain

Post  Decro435 on Thu Apr 05, 2012 7:36 am

Crusher wrote:Burninator,

give topical Kefir a try.

No Offense Crusher, but Burniator I wouldn't bother with the Kefir. Here's a few tips that I use:

Calm yourself.
Cut hair short.
Eat Healthy.
Nizoral or Baking Soda Rinse.
Exercise to release stress. Cardio.
Avoid Stimulants.

I guess you can try supplements. Only ever noticed negative effects from supplements, though most produced no effect whatsoever.

I'm dealing with a stress condition now. All my stress stems from losing my hair. I developed a panic disorder which is extremely annoying. I have regular attacks when relaxing which lead to all the symptoms of a heart attack and it can't be ignored. I find it hard to drive a car long distances as I almost feel like passing out. My ankles have become numb and regular twitching of my right foot has fatigued my leg muscle. I also have IBS.

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Re: Advice Needed - Burning Scalp Pain

Post  Crusher on Thu Apr 05, 2012 7:48 am

No prob, Decro,

just a thougt. Kefir is the only remedy until now that helped my itching and
burning scalp.

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Re: Advice Needed - Burning Scalp Pain

Post  CausticSymmetry on Thu Apr 05, 2012 8:08 am

Topical kefir is worth trying because it will verify that there is a problem with the flora in the gut. Not only that, but when there is a problem with the gut, supplements will not work as usually intended.

One of the reasons why hair loss is no enigmatic is that everyone's situation is vastly different. Making things
worse, the sick-care system is designed to treat symptoms, not address the underlying cause. Also, it
often uses nebulous labels or provides general terms for conditions without any real effective treatment.

With the case of IBS, a condition that some with hair loss face, "Irritable Bowel Syndrome" is a catch phrase
diagnosis that really means = "We do not really understand what is wrong with you"

The reason is that after a battery of tests, all revealing negative confirmation, the symptoms exist, yet
with no known cause.

Therefore, if a patient is not "positive" for one of these tests, the diagnosis of IBS is given.

So what could it be? It could something as simple as food allergy. The most common are wheat/gluten, dairy and casein.

It's worth a look at older threads of Littlefighter who wrote a lot on fighting dysbiosis (bacterial imbalance in the gut).

It's worth mentioning that almost all patients 'diagnosed' with IBS have low thyroid function. The thyroid hormone, never mentioned in allopathic medicine (because there is no patented drug for it), is T2, which is responsible for production of stomach acid. Typically stomach acid levels are low and when this happens, a burning scalp is one symptom, because phagocytosis cannot be optimized. In other words, pathogens are able to wreak havoc.

As already mentioned, a quality probiotic, clean diet should be looked into.

_________________
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http://www.immortalhair.org/mpb-regimen

Now available for consultation (hair and/or health)
http://www.immortalhair.org/health-consultation

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Re: Advice Needed - Burning Scalp Pain

Post  bh2o on Thu Apr 05, 2012 1:55 pm

hadrion wrote:I'd back off the sugar and fruit juice for a awhile and focus on meat, fish, eggs and veggies and use either potatoes/Sweet potatoes/white rice or beans for carbs. Eat fatty cuts of meat and fish. Cook in butter, coconut oil. Eat steak, salmon and if you want chicken eat it with the skin on and not the lean fat free cuts. You've got a long road ahead of you and there is no instant fix. You're going to have to experiment with diet and supplements to find what works. That said, CS and everyone here has helped me over many years to put together a regimen that shuts inflammation down for myself. I used to wake up in the middle of the night scratching my head like it was on fire. I haven't done that in years.

I would strongly consider getting on CS top supplements and changing the diet. Look up the Perfect Health Diet in particular which a lot of people have success with when fighting autoimmune related issues including rosacea.

As for a topical, colloidal silver sprayed on your scalp post shower will also help with inflammation and should shut down the scalp itch. Good luck!

Most of all be calm and try to process the stress differently than you are used to. That's what started it all for me. I went through a very stressful period in my life 6 or so years ago and my scalp got inflamed and my hair started falling out in clumps on top.

Don't let the derms put you on immunosuppressants if they try to talk you into them. That will create a host of problems for the rest of your life you don't want to deal with.

Nice post. TS, heed the message. Focus on your gut, and your diet. Supplement wisely.

anthonyspencer54 wrote:Totall agree with Hadrion about the diet element. From the sounds of it you might be having some immune issues. I believe these systems could be from overimmunity, maybe stemming from leaky gut. All in all, I think most of these problems reside in the gut and that's where treatment should be focused. I think the diet recommendations Hadrion gave are spot on.

Some other resources that I think would really, really help are:

- Dr. Art Ayers blog: http://coolinginflammation.blogspot.com/
- All of the stuff on Healthyfixx
- And last but not least, do the GAPS diet (gapsdiet.com) for a few months and see how it does for you...it helped clear up most of my gut issues, unfortunately I stopped to soon and went right back on the offending foods.

If you, like me, are experiencing hair loss at a young age that is just too rapid to fit the normal MPB timeline, I would almost immediately blame gut issues: leaky gut, and biofilm. Art Ayers blog addresses biofilm some, but all of Rdkml's posts and Littlefighter's are amazing.

Totally agree.

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Re: Advice Needed - Burning Scalp Pain

Post  ubraj on Thu Apr 05, 2012 7:58 pm

Too make things more complicated I'll add my opinion Smile A couple of these per day should help greatly for the scalp IMO. http://www.iherb.com/Natural-Factors-Celery-Seed-Extract-60-Capsules/2710

IMO, basically it all comes back to focusing on gout to help. I use to post about this a long-time ago. Just one session or a couple session on a PEMF device like a doug coil to get the calcium and sodium out of the cells and replaced with potassium would make one a believer in my theory. Or of course supplements and other measures to focus on gout.

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Re: Advice Needed - Burning Scalp Pain

Post  hoppipolla on Thu Apr 05, 2012 10:06 pm

Topical grapefruit seed extract in shampoo absolutely nuked dandruff (and itching/inflammation) for me, as did topical tea tree or thyme oil (in water or shampoo).

At the moment although I haven't stopped my loss, ketoconazole and massages seem to have stopped most of my inflammation and dandruff.

The IBS I would say is a crucial thing here. Do you get bloating/gas? Try going starch-free for 2 or 3 days and let me know if that clears up! lol Smile

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Re: Advice Needed - Burning Scalp Pain

Post  Burninator on Fri Apr 06, 2012 5:33 am

I've tried almost every topical imaginable (essential oil wise) and nothing seems to cure me. Again the weird thing is shampooing (any shampoo, doesn't matter) causes me to flare up massively. I'd definitely say I have IBS, had a colonoscopy a couple years ago due to constipation issues. My constipation is better but it's still there. I ordered the silver spray, celery and ecklonia extract. Yeah I do have bloating and gas, but I wouldn't say it's significant, but I definitely have it. I went starch free for a couple months and it didn't seem to help, I was just eating vegetables, fruits and chicken.

Right now my head doesn't burn, it more aches (haven't washed it in a few days). When I shower it burns, like someone poured gasoline on my scalp and lit a match. When I don't shower for a while and/or use organic dry shampoo it feels more a it's worst a dull ache at certain spots, to cold to almost fine.

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Re: Advice Needed - Burning Scalp Pain

Post  9rugrats5 on Fri Apr 06, 2012 5:47 am

B, don't have an idea about pain, but for the burning sensation give aloe vera juice (aka gel) a try (the unprocessed variety, not the debittered one). Apply when you feel the burn, and just after you shampoo.

good luck.

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Re: Advice Needed - Burning Scalp Pain

Post  ubraj on Fri Apr 06, 2012 6:22 am

Burninator wrote:I ordered the silver spray, celery and ecklonia extract.

Just make sure you use enough celery seed extract for it to work. I believe I took 4 (2 x 2) per day.

There is another celery seed extract brand that is sold on iherb for cheaper but it wasn't very effective IME.

Something like celery seed extract sure beats minoxidil by many many multiples IMO/IME without the side effects that minoxidil can give (thinner hair, dark circles under eyes, hair loss once you quit, etc.).

By the way, while I've never used it, don't forget crushers recommendation of topical kefir based on his experience and that of others and CS's post is very good info.

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Re: Advice Needed - Burning Scalp Pain

Post  Burninator on Sat Apr 07, 2012 12:36 am

Ok got the good Celery Seeds, had them on Amazon for the same price so ordered them with my Prime account. I'll look into topical kefir also, put organic (needs to be refrigerated) aloe vera gel on my scalp yesterday also. Haven't washed it in a few days, been using dry shampoo, emu oil or now the aloe vera. I put the dry shampoo on every 2-3 days and then using the tips of my fingers I shake it all out, probably lose about 50 hairs every time I do this, but since I haven't showered or do anything to losen them in that time that's fine. Still not understanding the supposed "normal" shedding of 100ish a day, seems like a lot. Head kinda hurts/burns today so hoping that this new stuff helps, going to an integrated medicine doctor soon who will probably put me on chelation and what not.

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Re: Advice Needed - Burning Scalp Pain

Post  hadrion on Sat Apr 07, 2012 2:51 am

Good luck Burn. Report back here. The celery seed extract will help with the gout. I also believe the Ecklonia Cava extract is going to make a difference in the burning you're feeling. If you do chelate, I can tell you from my experience that the supplements went from working at a 5 out 10 to about an 10 out of 10 in many cases.

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Re: Advice Needed - Burning Scalp Pain

Post  Burninator on Wed Apr 11, 2012 12:51 am

So I've been taking the celery seeds, ecklonia kava, aloe vera and topical kefir for a few days and I'm pretty much the same. Is there an eta when this stuff should start helping? I don't expect an over-night miracle, just trying to get a time-frame. I suspect I have some nasty form of Chronic TE, since my hair just seems to fall and not grow back (due to the rampant painful inflammation). I washed my hair this morning for the first time in probably 5 days and it's killing me like normal now (sucks that this is normal! lol). Does anyone else have this issue that whenever they wash their hair that they are in excruciating pain for pretty much the whole day? I have an acupuncture appointment this Saturday and should be meeting with my Integrated medicine doctor soon. I'm just perplexed why this has been ongoing for 10 months and nothing has dented it, diet, supplements, topicals, etc. I am wondering if I have extremely elevated cortisol levels due to stress that has been constant for almost 10 months. Perhaps DHEA will help?

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Re: Advice Needed - Burning Scalp Pain

Post  hadrion on Wed Apr 11, 2012 4:36 am

Burninator wrote:So I've been taking the celery seeds, ecklonia kava, aloe vera and topical kefir for a few days and I'm pretty much the same. Is there an eta when this stuff should start helping? I don't expect an over-night miracle, just trying to get a time-frame. I suspect I have some nasty form of Chronic TE, since my hair just seems to fall and not grow back (due to the rampant painful inflammation). I washed my hair this morning for the first time in probably 5 days and it's killing me like normal now (sucks that this is normal! lol). Does anyone else have this issue that whenever they wash their hair that they are in excruciating pain for pretty much the whole day? I have an acupuncture appointment this Saturday and should be meeting with my Integrated medicine doctor soon. I'm just perplexed why this has been ongoing for 10 months and nothing has dented it, diet, supplements, topicals, etc. I am wondering if I have extremely elevated cortisol levels due to stress that has been constant for almost 10 months. Perhaps DHEA will help?

Burn - Please honestly list your actual diet and the dosages of what you're taking. That will help a lot. That said, it's not going to work as quickly as you'd like it to and you won't know if you're targeting the right things until you get some test results. If you think you have a cortisol issue, you should get tested to rule it out. If you do have elevated Cortisol, Sensoril and Holy Basil both help.

Even with my worst bouts of inflammation I never found washing my hair to be painful so I can't relate to that. You said you went to 3 derms I think and they did biopsies, right? What did they tell you and what did they prescribe for you?

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Re: Advice Needed - Burning Scalp Pain

Post  Burninator on Wed Apr 11, 2012 7:17 am

I eat:
Organic Chicken Tenderloins, Wild Caught Salmon, Wild Caught Haddock, Wild Caught Monkfish, Organic Chicken Drumsticks/Breasts, Organic Kale, Local/Organic Spinach, Local/Organic Broccoli, Organic Cauliflower, Local Sugar Snap Peas, Water (Lots of It), Organic Raisins, Organic Sunflower Seeds,
Organic Pumpkin Seeds, Organic Grapefruit, Organic Oranges, Organic Eggs, Kefir (now).

I eat 4 eggs, spinach and maybe a grapefruit or orange for breakfast. Lunch I have about 4 chicken tenderloins, broccoli and cauliflower, then dinner it's either 1/2 lb fish or 1/2 lb of chicken along with whatever vegetables I have on hand. I snack on the seeds and raisins throughout the day, maybe eating 8oz of seeds and the same of raisins.

I had one biopsy done and it came back with minimal inflammation (he attributed it to the scalp puncture) with a slight shift from anagen to telogen (it was taken at one of my most painful spots) along with mild miniaturization (possibly due to chronic inflammation), what mild means I have no idea. First doctor said everything looked fine and prescribed me an anti-depressant (which I didn't want), second did the biopsy and prescribed me three sets of topical steroids (one gave me folliculitus and the other two didn't do anything), he was basically at a loss and tried throwing every steroid he could think of at it. So I went to a third dermatologist for a second opinion (based on the second's prognosis of nothing) and she literally said he's right and there's your second opinion then walked out. Basically all the areas that hurt the most are losing hair, it's mostly at my part on the left side of my head (moving inwards towards the middle of the head) but it also is on the back on my head as well. I essentially went from having 0 hair problems (had a ton of it) to unbelievable pain and hair loss in about 5-6 months.

Yes showering is excruciating pain, words can't possibly describe how much it hurts. It's so bad I start getting headaches and even nausea from the pain (not often, but sometimes). I actually left work early today to go home and put aloe vera on my head to dull the pain.

I have my integrated medicine appointment next Tuesday and hopefully he'll shed some light and do some cortisol tests. The cortisol is just a shot in the dark since at this point I really have no idea what's going on.

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Re: Advice Needed - Burning Scalp Pain

Post  jlj on Wed Apr 11, 2012 7:45 am

Please give quality Virgin Coconut Oil a try.

Some people had very good results with Virgin Coconut Oil at Folliculitis.
I know it may not be the same scenario as your case but at the very least it will bring away some pain from your scalp.

Source: http://curezone.com/forums/fm.asp?i=1618811
[I have been diagnosed with Folliculitis Decalvans of the scalp, and had a biopsy that confirmed the presence of Seborric dermatitis on my face and other areas of the body. This condition has been going on for about 8 years, and I have tried every cream/shampoo possible.
Many people in these forums have been using and suggest using Virgin Coconut oil for all types of skin issues, I would like to Thank them, it has been so beneficial to me.
I have been using Virgin Coconut oil now for around two months on a daily basis and my condition has never been better, I am not cured, and more than likely will never be, but I have seen real progress.
The Virgin Coconut oil I buy is organic and sold at health food stores, it comes solid so I put it on the stove in a small container and slowly heat it to it becomes liquid. I apply a thin layer on my whole face and soak my bad areas of the scalp with it, then wrap a towel around the area for sometimes just a few minutes to up to a hour.
I have also stopped using all shampoos such as H&D and Nizoral, I am convinced these were making me worse and spreading this condition, now this may just because my skin is so sensitive.
I only use a bar of soap on my body and scalp in the shower, I shower once sometimes twice a day.... look for the bars of soap at the health stores make sure they contain only natural products, I am not going to give any brand names, but they should contain something like the following: Organic Coconut Oil, Organic Palm Oil, Sodium Hydroxide, Water, Mentha Arvensis, Organic Olive Oil, Organic Hemp Oil, Organic Jojoba Oil, Organic Peppermint Oil.
My skin was so dry and cracking, it is now much more moisturized and healthy.
Diet: I have tried to eliminate all sugars, caffeine, and eat very little flour/corn products, I did the anti candida diet for 2 months before I got the flu and started eating anything just to get some weight back on.
Virgin Coconut Oil has been the best thing I every have used, here is what it has almost cured
dandruff on the scalp, dandruff on beard and neck area, seb derm break outs on face and body,
cracks by my ears on scalp area that were very painful, and has helped my Folliculitis decalvans immensely.
Try using it once a day, I would recommend using it first during the day, since it may burn at first you may need to wash it off, start in a small area, it may take a while to kill off whatever is living in that area.
When you start to get it under control and experience no burning leave it on all night, this is the most important part in my opinion since the fungi/mites which may help cause/spread this condition are most active at night when the host is sleeping... do not forget to get your eyebrows and your whole hairline with Virgin Coconut oil.
For really tough spots I have had to use Protopic in the past, but so far Virgin Coconut oil has replaced all medications.
I know how painful this condition is both Physically and mentally, I write this in the hopes this helps someone out there.

Hi Follicle!
"Can you be more specific as to how the coconut oil has helped your FD?"
The Virgin Coconut Oil has reduced the following: Redness, irritation, inflammation, cracking, dryness, bleeding, and the insane crawly itchy sensations.
"Do you have scarred areas of your scalp? Inflammation, pustules, tufted hair?"
Yes, unfortunately I have scars, inflammation, pustules, and plug like tufted hair, but the good news is that saturating my scalp in Virgin coconut oil has reduced all of these symptoms like nothing else that I have tried, it truly brings me relief... whenever I start to scratch or feel a itch coming on I know its time for more oil... I do not just apply a small layer on, I actually soak the area and wrap with a towel.
Hope this Helps! ]


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Re: Advice Needed - Burning Scalp Pain

Post  Burninator on Wed Apr 11, 2012 7:51 am

I've used the organic extra virgin coconut oil to no avail. :-( I've also washed with Dr. Bronners peppermint shampoo for months and sadly that hasn't helped either.

Burninator

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Re: Advice Needed - Burning Scalp Pain

Post  hadrion on Wed Apr 11, 2012 8:21 am

Your diet sounds ridiculously clean.

What's your living environment like? Any mold that you know of?

Maybe get some allergy tests too to see if there's something your highly allergic to causing this kind of damage?

When I first started losing hair, it was after a very stressful period of my life and I was losing it fast. I went to a derm who did a punch biopsy and they diagnosed it as combination scarring alopecia & male pattern baldness. Scarring alopecia offers no hope of regrowth where it hits. I was given Clobetasol foam (can't remember the name now), Doryx (doxycycline) and cortisone injections into my scalp to stop it. I was also put on Rogaine foam and given a script for Propecia which I never thankfully filled. I did use the Rogaine however. That combo just led to more hair loss and inflammation. I was on it for a year and my health great worse. Especially, my gut health from all the Doryx.

It wasn't until I found CS and his forum that I started to fix my inflammation with diet and supplements. It took awhile to get the inflammation under control and get my scalp from the pink/red state to a white state again. I haven't seem inflammation for years and I stopped taking the drugs the derm gave me after a year, so I've been on supplements and diet as my protocol for about 5 years now with no major issues. It took time for me though and nothing happened overnight.

The key for me was diet, exercise, stress management and not looking at my hair every five seconds. I don't think you have scarring alopecia as that would've shown in the biopsy results and with 3 Derms looking at those, I can't imagine all of them would not consider that if it were a cause.

Hopefully, this integrative Dr. will shed some light on this. Hang in there.



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Re: Advice Needed - Burning Scalp Pain

Post  Burninator on Wed Apr 11, 2012 10:06 am

hadrion wrote:Your diet sounds ridiculously clean.
Hah if you were in as much pain as I constantly am you'd go diet nuts also. lol

hadrion wrote:What's your living environment like? Any mold that you know of?
No mold that I'm aware of, I've also washed my hair at the work gym for weeks, with bottled water, and been on vacation twice for 10 days plus and it killed everywhere. It's important to note that I say wash not rinse, if I just wet my hair the pain is significantly less. Washing it with shampoo or whatever is what tends to murder it.

hadrion wrote:Maybe get some allergy tests too to see if there's something your highly allergic to causing this kind of damage?
I do have allergies, allergic to dogs (slightly, I have 2), dust, mold, pollen, cats, etc. I've had the dogs for years though and again I've been away from them for a while and the pain persists.

Yeah I sometimes wonder if I have the scarring alopecia, but none of the 3 derms saw anything to indicate as such (my scalp looks fine, sometimes just a little pink) and the biopsy showed nothing out of the ordinary to explain the constant pain I have.

I'll work on the supplements and possibly my diet. Around the time that all this started I went crazy healthy diet wise. Used to eat total crap, whatever I wanted (never gain weight, have fast metabolism), so went from that to what you see above. I sometimes wonder if I removed something that my body needs and now it's totally freaking out.

I do exercise, around an hour a day. Stress is an ongoing issue mostly because of the constant pain I'm in, it's hard to not be stressed when stuff hurts so bad. I also have various joint pains, I am wondering if everything is related. It's funny I was telling a co-worker about my issue and I said "Yeah I have these joint pains, like if I do this (and I lightly rapped the top of my hand with my finger) it hurts." And yeah it REALLY hurt. Weird.

I'll post on here after I see the integrated medicine doctor, who knows maybe he'll be my miracle cure (sure is costing enough!).

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