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hemochromatosis and hair loss

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hemochromatosis and hair loss

Post  RobHealthMan on Thu Aug 08, 2013 3:53 pm

hello CS and others,

can iron overload or hemochromatosis cause hair thinning and speed up hair loss?

hemochromatosis can be a common issue for many men! I wonder if there is a correlation.

adding more info: i just read that hemochromatosis contributes to adrenal fatigue, pituitary disorder and hypothyroid. All these things can cause hair loss!

thanks you!

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Re: hemochromatosis and hair loss

Post  CausticSymmetry on Thu Aug 08, 2013 6:50 pm

RobHealthMan - It's a serious problem and yes, it would make hair loss worse. All of that iron fuels an infection.
Therapeutic blood donation is essential

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Re: hemochromatosis and hair loss

Post  RobHealthMan on Fri Aug 09, 2013 3:44 am

CausticSymmetry wrote:RobHealthMan - It's a serious problem and yes, it would make hair loss worse. All of that iron fuels an infection.
Therapeutic blood donation is essential
Hi CS,

from what I am reading MEN are high risk of iron overload. Woman menstraute so they 'give blood' once a month. so they are more at risk of anemia.

I am feeling this is DEFINITELY an area of focus for men with thinning hair like myself!

Checking " Ferritin" levels is the way to do it.

Then donate blood every month or every 2 months continuously is a great remedy.

How about IP6 to chelate excess iron CS?

thanks!

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Re: hemochromatosis and hair loss

Post  sighguy on Fri Aug 09, 2013 7:16 am

I wouldn't look into it too much... if you really had hemochromatosis, you would realize how severe that is. Hairloss would be the least of your problems when your looking at multiple organ failure especially with respect to the liver and the heart. Also, unless you're a thalassemia major patient and undergo frequent transfusions, I doubt you really have hemochromatosis.... you would have to purposefully supplement with iron to get enough in the blood to cause symptoms. If you check Hb and ferritin levels of an average healthy bald man, I severely doubt his numbers would be different from anybody else. Just my 2 cents.

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Re: hemochromatosis and hair loss

Post  RobHealthMan on Fri Aug 09, 2013 6:36 pm

sighguy wrote:I wouldn't look into it too much... if you really had hemochromatosis, you would realize how severe that is. Hairloss would be the least of your problems when your looking at multiple organ failure especially with respect to the liver and the heart. Also, unless you're a thalassemia major patient and undergo frequent transfusions, I doubt you really have hemochromatosis.... you would have to purposefully supplement with iron to get enough in the blood to cause symptoms. If you check Hb and ferritin levels of an average healthy bald man, I severely doubt his numbers would be different from anybody else. Just my 2 cents.
from what i read, if ferritin levels in men are over 300 ng/ml, you have hemochromatosis. some people have it severe than other's depending on how much higher your ferritin levels are.

mine are 514 ng/ml. this is much too high....this is something i have to look into..

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Re: hemochromatosis and hair loss

Post  sighguy on Sat Aug 10, 2013 7:54 am

Do you know what your Hb levels are? Also does your doctor know that your ferritin levels are over? If your not a beta thal major patient then you likely have hereditary hemochromatosis. Seriously that condition is not safe and can sometimes be fatal. Out of genuine concern I really think you should see a doctor, get a proper diagnosis and if necessary start some form of chelation therapy. The doctor may opt to just remove some blood in order to get rid of excess iron instead of chelation. My point is, that shit is usually serious. I really think you should do something about it as soon as possible. Don't delay.

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Re: hemochromatosis and hair loss

Post  lookalike on Sat Aug 10, 2013 10:10 am

I was diagnosed with Hemochromatosis 7 years ago after being extremely fatigued and lethargic all the time (i was only about 24). My doc did an iron profile (blood test which includes ferritin, saturation, hematocrit and a few other levels) and my blood saturation was at 78% (should be around 20 to 30 for normal person). He then had me do a gene test and it came out showing that I tested positive for having two copies of C282Y gene. It means both parents have to carry this mutated gene and you get both bad copies (great luck). Basically your body doesnt know when to shut off taking in iron so you overload and store in organs. They tell you that you need to have a pint of blood taken out every few weeks and so thats what I did for awhile. But now that ive changed my diet (no wheat, no red meat, no vit c with meals, no dairy) i only have my blood taken once a year.

I maintain a normal life but i can tell you that HH makes you very tired and also that it def gives me depression. I think its lack of oxygen due to high blood iron saturation. I have brain fog bad and my memory is gone. Im in my early 30s and have been going grey and diffuse thinning for years now. Tried everythin in the book including fin and minox. All they did was destroy my hairline and give me wrinkles. 1 in 200 white men have this disorder so if you think you might have it, go get checked. If you have any other questions Ifeel free to ask. Ive gone through a lot of personal research in learning to live with this disease. Its no fun but it can be managed if you make right changes. Id be happy if I could have just kept my hair. As i write this i have olive oil, onion juice and saw palmetto juice on my head so I still have hope even if its just a fantasy ha. Anyway good luck and Id love to hear if anyone else is dealing with this same illness.

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Re: hemochromatosis and hair loss

Post  RobHealthMan on Sat Aug 10, 2013 11:59 am

sighguy wrote:Do you know what your Hb levels are? Also does your doctor know that your ferritin levels are over? If your not a beta thal major patient then you likely have hereditary hemochromatosis. Seriously that condition is not safe and can sometimes be fatal. Out of genuine concern I really think you should see a doctor, get a proper diagnosis and if necessary start some form of chelation therapy. The doctor may opt to just remove some blood in order to get rid of excess iron instead of chelation. My point is, that shit is usually serious. I really think you should do something about it as soon as possible. Don't delay.

hi sighguy, can you tell me what Hb levels are?

i have not told my doctor yet. as soon as i saw my ferritin levels, i went and donated abuot 16 oz. of blood. Red cross only lets you donate every 2 months. I need to start off by finding a way to donate or draw out 16 oz of blood every Month.

then i plan on taking IP6 to chelate the Iron.

I need to find a doctor for this, but what kind of doctor do i approach?

Thank you!

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Re: hemochromatosis and hair loss

Post  sighguy on Sun Aug 11, 2013 6:33 am

lookalike, I'm really sorry to hear about your situation. I know its difficult to cope with but for whatever my words may be worth just keep giving life your best. That's what we all need to do. RobHealthMan, lookalike is a more accurate example of what hemochromatosis can be like which is why I was concerned. Hb is just an abbreviation for hemoglobin but its not as important your ferritin levels for a diagnosis of hemochromatosis. If your Hb levels are above the normal range it can still help in the confirmation of the diagnosis. Honestly, I can't tell you much about IP6 because I've never come across it as a drug for iron chelation. The drugs I was taught were deferoxamine, deferiprone and deferasirox. Ideally, you should see a hematologist. Some clinical pathologists do subspecialties in hematology and may be just as good. If you can't see one of those specialists then a regular family physician will do. He should have the expertise to diagnose you and treat the condition. If he thinks its outside of his range of capability then he'll refer you to someone who is capable. Hemochromatosis is generally asymptomatic, meaning it usually doesn't present with symptoms. That is only in its early stages though. The fatigue and lethargy lookalike mentioned is usually characteristic of the disease starting to show severity. I don't get the impression that you're someone who's feeling ill so I'm going to assume you're still asymptomatic. If you get the condition under control at this stage, then it won't have to progress to the stage that lookalike experienced. Still, what I say here can't replace actual face time with a doctor and proper blood testing to diagnose and analyse disease severity so start making doctor's appointments.

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Re: hemochromatosis and hair loss

Post  takingaction on Tue Aug 20, 2013 5:18 pm

Ah, good timing. I was discussing the subject elsewhere. How does hemochromatosis affect individual hairs? I mean in length, thickness, etc.

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